Shaping Our Lives networking website
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Ability Northants ceased working from FEB 2010 -SOLNET have kept the website on as there is still some information which might be useful
Disability Directory of Disabled Information aids and Mobility Services
Hammersmith and Fulham's free information service for local disabled people, their carers, families and care professionals. It provides useful information about local services and keeps you up to date about events and schemes in the borough.
Acting Up provides multimedia training and support for people at a disadvantage because of communication difficulties. We work with services and community groups. Our aim is for people to exert greater control over their lives.
Acting Up's iContact Magazine is a multimedia mix of stories, features and issues from older people.
Action Deafness aims to improve quality of life by promoting independence and equality of opportunity for Deaf, Deafened, Deafblind and Hard of Hearing people
ADKC is an organisation run and controlled by disabled people. We support disabled people to live independently and campaign for an inclusive society which does not discriminate against disabled people.
Action on Gilbert's Syndrome helps people with Gilbert's Syndrome
Adept is a disability equality company that provides transcription, training and access audits to increase the inclusion of disabled people.
Cancer user group for patients who live in the Airedale General Hospital NHS Trust catchment area.
Our Services are designed by service users who have experienced their local communities. The experiential material in our delivery empowers the messages we are giving.
The Information Service began in 1990. What started in a small room and one phone has developed over the years into a service with trained volunteers who use a national and local disability information database for enquiries.
Pan disability group serving all Leeds which is user led.
National user-led anxiety disorders charity providing a range of support services for people affected by all forms of anxiety disorders.
Arthritis Care in Scotland is the voice for people with arthritis in Scotland. Decisions about how to implement Arthritis Care’s mission in Scotland are made by a Scotland Committee, consisting of representatives of branches throughout Scotland.
The Asian Women's Resource Centre is a specialist women's organisation, providing support to BMER (Black, Minority, Ethnic, Refugee) women and children
Social Information on Disability, but commonly known as ‘SID'. It provides access to quality information on all aspects of living with disability, and aims to give people the information they need to live life to the full.
An umbrella organisation supporting providers of services to people with a learning disability.
To provide a forum for disabled people to share both their problems and their experiences of successful personal development and valued work, as well as to help create conditions for other disabled people to realise their full potential.
Augment (Scotland) Ltd has been in existence for 10 years. We are a mental health service user-led voluntary organisation.
We are a research group at the University of Birmingham that includes staff who teach on our Autism programmes, service users and carers.
AILN are a user led organization that supports individuals who access Direct Payments or Independent Living Funds with information and practical support.
For more information on all CIIIL's projects and services please follow the links to our website
Pensioner group campaigning for improvements for older people in many areas, health, travel etc.
We are a self and peer advocacy group run by and for people learning disabilities in Bath and North East Somerset.
The website is for disabled people who employ PAs however they are funded - it is NOT just for disabled people who are receiving Direct Payments or Individual Budgets from the local authority.
Betterdays Cancer Care is An African Caribbean Breast Cancer organisation. We provide information,outreach and practical support.
Mission Statement BID Services works in partnership with deaf people to provide high quality services and opportunities that enable deaf people and the other communities that we work with, to have broader choices and control over their lives.
A Publishing service for people with mental health needs, to help people find creative quality with their writing and artwork.
Administered by Mind in Birmingham we are an innovative mental health project. We have a small, dedicated team of staff and volunteers, and between us we have plenty of mental health experience from both a personal and professional view point.
We are a consultation group working along side the PCT Strategic Housing, Transport and supporting people
Supports mental health service users in the Bolton Area. Has a Committee made up of service users
Boro Drugs Forum is a service user involvement group for people with drug or alcohol misuse problems in the Middlesbrough area.
A national breast cancer charity working in partnership with a diverse stakeholder community.
We support disabled people into employment, work placements and training. We deliver training & consultancy on disability issues to employers and service providers. We are controlled by disabled people and 60% of our staff are disabled people.
BAC recruit train and support volunteer advocates to resolve the issues of disabled people. we provide one to one advocacy, self and group advocacy and most importantly peer advocacy
User lead organisation for people living with a learning difficulty living or visiting the Bristol Area
We are a campaigning, consultation and development work organisation and provide advice to other organisations. Members are Disabled people who live, work or study in Bristol, or disability equality organisations in Bristol.
The British Acoustic Neuroma Association (BANA) was formed in 1992. BANA is organised and administered by people affected by acoustic neuroma, is a registered charity and exists for mutual support, information exchange and listening.
The BDA is the largest Deaf organisation in the UK that is run by Deaf people.
The BDA is a charity providing support services for dyslexic people
BATH is a not-for-profit organisation providing services to help meet the needs for older and disabled people. We offer a door-to-door transport service, professional advice for living at home and short term break holiday scheme's.
Self advocacy for people with a learning difficulty who live an independent life and receive no or little support
bruised uk is a website that came into being to provide information to service users/carers & their families & friends
A mental health user group for people of the Caribbean and Africa
Caer Las is a registered charity dedicated to tackling the cause and effect of social exclusion. We've been working across South Wales for over 30 years, helping vulnerable people gain their deserved place as valued members of society.
Cambridgeshire Local Involvement Network -LINk - gives people the opportuity to influence local health and social care services.
We are an organisation founded, run and controlled by disabled people...
The Care Quality Commission (CQC) registers, inspects and reports on adult social care services in England. Our job is to improve social care and stamp out bad practice. Used to be called the Commission for Social Care Inspection (CSCI).
We have 8 people in this organisation have meetings co-researchers in to wartime memories
Our aim is to support disability and enable disadvantaged or disabled people.
Catch-A-Fiya is a survivor controlled forum for mental health system survivors, funded by the Big Lottery Fund to facilitate positive change for survivors over 3 years.
Promoting justice, health, education and social development of all its members and the public.
Run and controlled by people with learning difficulties. We mainly do advocacy, training, research and consultancy work.
The Centre for Citizen Participation (CCP) at Brunel University is an initiative which undertakes research and provides education, training and consultancy in the field of user involvement and public participation.
User-led group producing a newsletter, organising social events for members, encouraging user-involvement and promoting support needs
CHANGE is an organisation run by disabled people that campaigns for all rights of people with learning disabilites.
The Cheshire Disabilities Federation was formed in 1992 as a registered charity and a company limited by guarantee.
Child Disability Help is aimed at providing vital support to families in the UK with a child or children up to 16 years of age with a disability.
The Centre for Independent Living, covering Hull and the East Riding of Yorkshire managed by Choices and Rights Disability Coalition.
Citizenleaders.org is a service user led new formed social enterprise. Founded by a member of the East Midlands Citizen Leaders group and all citizen leaders have been Dept of Health Acadamey trained around personalisation.
We are an organisation that is made up of parents who have a mental illness.
we work to improve services and opportunities for people with learning difficulties
Art and mental health charity which provides creative workshops for people with experience of mental distress
Provides residential services, independent living services and guardianship for individuals with intellectual disabilities. This organisation is based in the USA.
Provision of social skills and meeting place for deaf and hard of hearing people throughout Cornwall
We are a user led organisation of Disabled People
The County Durham & Darlington Adult Mental Health Forum brings together adult mental health service users and carers from across the whole of County Durham & Darlington. We have representatives from 7 different service user and carer groups.
The mental health involvement team at County Durham pCt exists to support the work of local adult mental health service user and carer groups across the county
Our aim is to improve the mental health services by real involvement of those who use (or have used) services.
Join us on Creative Cafe http://creativecafe.org.uk and express your creativity
Distress Awareness Training Agency is a collective of people with direct experience of mental or emotional distress. We provide training, research & consultancy services from a survivor perspective.
Offer low cost tutorials / seminars to non-professionals in residential property related development projects
Charity providing information, advice and support for people with all forms of hearing loss.
A small, independent & registered charity run by deaf parents for deaf parents.
Private company providing training and consultancy in deafness in order to break down barriers that disable deaf people - whether the barriers are social, attudinal or environmental.
Empowering all Deaf, deafened, hard of hearing and Deafblind people to achieve their full potential and be fully included members of the wider community.
Depression UK promotes mutual support between individuals affected by or at risk from depression, with the aim of encouraging self help, recovery and personal growth.
an organisation supporting disabled people towards independent living
DIAL Barnsley is a generic, user led, disability advice organisation operating in the Metropolitan Borough of Barnsley.
An information and advice line on any issue relating to a disability question
DIAL is a Disability Advice Centre run by and for disabled people providing information, advice and advocacy on all aspects of disability including a comprehensive welfare rights and communicate care service.
Welcome to DIAL UK, a national organisation for a network of approximately 130 local Disability Information and Advice Line services (DIALs) run by and for disabled people.
A voluntary organisation providing peer support to users of social care services
Dis:Course is a project supporting groups concerned with disability and long-term health issues in Berkshire and the surrounding area. It will also provide an information service to disabled people, their families and carers.
Disability Action in Islington (DAII) is run by and for disabled people. We aim to support disabled people to gain more control and choice over their lives, have better access to services and opportunities, and challenge exclusion and discrimination.
The Disability Advice Project aims to promote the rights of disabled people, families and carers.
Our organisation is controlled by disabled people through our Management Committee, which has a majority of disabled trustees, and our growing membership.
Our aim is to get people with disabilities fully integrated into the community.
DASh is a disability arts user led organisation, running arts projects across Shropshire and beyond.
Campaigning and support for people with all types of disabilities.
Darlington Association on Disability was established in 1986 as a voluntary and charitable organisation led by disabled people.
Disability Coalition has a user group network for people in receipt of or eligible for Direct Payments.
Our mission is to empower assist and facilitate to ensure equality in Cornwall for disabled people
DisabilityCroydon promotes independence and access to services for people with disabilities and manages Advocacy and Direct Payments Support Services, computer training and disability related advice & information.
A CIL for Derby with 20 paid staff supporting disabled people access all independent living opportunities.
Disability Direct is a disability website providing a directory of disability organisations and news
Disability Equality North West, (formerly known as Preston Disc) exists to further the human rights of disabled people and works to remove the disabling barriers put in place by society.
Disability Essex provides a wide range of services for disabled people, their families and carers.
Small national charity providing free, confidential specialist legal advice and information to disabled people, families, carers and enablers. Also provide legally based training to those advising or advocating for disabled people.
Disability LIB is a capacity building project for Disabled People's Organisations (DPO's) in England. www.disabilitylib.org.uk
Supporting people with physical, mental and sensory impairments, living or working in the London Borough of Hounslow.Also provide information and advice to carers and professionals.
Powys Wide disabled peoples organisation providing peer support advocacy and information
Disability Wales is an independent, not for profit organisation established in 1972.
Disability West Lothian aim to improve the quality of life for people with disabilites living and working in West Lothian
Disability Site covering a range of topics, News,Directory, Places to Visit, Places to Eat, Accommodation
DisCASS provides advice & support to disabled people, their family & care givers.
A national organisation of and for disabled parents and disabled people planning to become parents.
Database of disabled workers and Job opportunities: Raising the independence of disabled people by enabling them to take an active role in the economy and to raise awareness of the contribution that disabled people can make to society.
DisabledGo provides online access guides in a great deal of detail to a huge range of venues.
A service user-led mental health representation, advocacy, and day services charity.
DOTS Disability is a Community Interest Company led by a Management Committee of 18 disabled people and other users of support. We work to promote a more inclusive society.
Wheelchair user. Secretary of the World Council of DPI. Involved nationally and internationally for almost 30 years
Come to ECIL for everything you want to know about Disability, but were too afraid to ask. We offer advice, information and we can help you get what you need to live an independent life. It's FREE to join, so why not become a member.
We work across Suffolk to support people with mental health problems and to enable independent living
The East Sussex Disability Association enables disabled people in East Sussex to achieve independence and control over their own lives.
“The Essex Inclusive Sports Enterprise's mission is to make sport inclusive to all disabled people in the County of Essex. This is will be achieved by supporting individuals to either spectate or participate within their chosen sport.”
E.D.A. is an association of disability groups and people with disabilities.
The English Community Care Association (ECCA) is the largest representative body for community care in England.
Mental Health user survivor network controlled by survivors with member groups all over Europe
Epilepsy Scotland works with people affected by epilepsy to ensure their voice is heard. We campaign for improved healthcare, better information provision and an end to stigma.
A network of disabled people which advises the Westminster Government and acts as a conduit for disabled people on issues affecting them.
A rights based organisation run by & for disabled people in Essex.
The European network on Independent Living works to increase the awareness and reality of independent living, and the solidarity of disabled people throughout Europe. It is run and controlled by disabled people
Evolving Minds provides a user-lead, independent and democratic space to discuss, debate, share, learn and campaign for alternative approaches to mental health.
A group of people, based in West Sussex, who use our experience of living with disabilites to inform and educate health and social care professionals.
A voluntary organisation for birth families involved in child protection or family court proceedings.
Striving to include people with disabilities in decision making and working towards inclusion of diabled people in all aspects of society in Fife.
Fife User Panels are small groups of older people who have an opportunity to be involved in the planning of services locally.
The site has a wide range of information for disabled people and their carers in the UK.
Footsteps was set up to provide art sessions for those with mental health problems and learning difficulties, to allow them to express themselves creatively in an environment where the participants would not feel threatened or judged.
Working on behalf of all Gypsies and Travellers regardless of ethnicity, culture or background.
We are a service user led disability organisation providing services for disabled people and their families.
Gloucestershire Older Persons' Assembly enables older people across Gloucestershire to have a more effective collective voice.
A County Council funded project to develop a forum of users of social care services in Gloucestershire.
Grandparents Apart Self Help Group Scotland is a campaigning/support group for grandparents/grandchildren.
Grapevine is a charity run in partnership with people with learning disabilities. We work together to bring about change.
Greater Manchester Coalition of Disabled People campaigns for the rights of disabled people and does this through providing information, advice and organising events.
WE ARE JUST STARTING OUT, BUT OUR KEY AIMS ARE MAINLY TO ADVOCATE AND TRAIN OTHERS (UNINFECTED AND AFFECTED BY HIV) THROUGH OUR EXPERIENCES OF SERVICES "EXPERT BY (THROUGH) EXPERIENCE.
GMNA unities charities working together to improve the quality of life for people with a neurological condition.
GAD is comitted to user involvement - by this we mean disabled people can and do feed information into the organisation in different ways about the projects and services they receive.
We are a Service User Support group with a membership base of 26.We are recognised as a model of good practice throughout the london area.
HAFAD is an independent organisation promoting equality for disabled people. It provides high quality services and campaigns to remove artificial barriers in order to develop opportunity, choice, control and independence.
Hammersmith and Fulham Service User Network (SUN) exists to represent the mental health service user perspective in influencing and improving health services.
Hampshire Coalition of Disabled People (HCODP) promotes the active participation of Disabled People in securing the necessary facilities and support to ensure maximum choice through full inclusion into all aspects of society.
HAD is the umbrella organisation of Disabled people, residing, working or undergoing education or training in the London Borough of Harrow and has been established since 1971.
We are a mental health day service providing services within the Lancaster District We have other services in the area namely; Workspace (Employment support service), Growing Matters (Horticulture project),Carer Support service, &Supported Housing
HRDF exists to ensure the appropriate provision of service to disabled people in Hastings and Rother.HRDF is run for and by disabled people.
Having a voice is a user led voluntary organisation based in East Manchester. Having a voice supports people who use mental health services as they get involved in the evaluation and planning to improve these services across Manchester.
Healthtalkonline is a website that allows people to share their experiences of health and illness
Croydon's mental health service user group -working for change and better understanding in mental health
The Hearing Voices Group N.I. is a facilated member of the Hearing Voices Network. We launched the group in June 2005 and are currently working towards the geographical spread of HVG's not only in N.I but down South as well.
Aims and Purpose of HVN Part of the overall aim of HVN is to promote positive explanations of voice hearing experiences and give people a framework for developing their own ways of coping.
Telephone Helpline covering Herefordshire and surrounding Counties
This Group is open to ALL disabled people living in Herefordshire and offers peer support, discussions and information about Independant Living, consultations with Agencies. Meetings are held 6-weekly on a Tuesday 11-1 pm (lunch 1-2 pm)
We are a group of about 10/12 people mostly over 60 but not all. We meet once a month for tea/coffee and a good old natter, with lots of laughs.
Hertfordshire PASS is a user-driven charity enabling people with disabilities to live more independently.
HUG is an organisation that acts to represent the views of people with a mental illness in the highlands. it has around 350 members and has gained a national and even international reputation for its advocacy antistigma and awareness raising work.
Hunts Mind is a service user led organisation which means our values and our approach always has the service user at the heart.
Icebreakers is a group for Gay and Bi-Sexual men , aged 18 - 80+, who are either just 'coming out', are already 'out' but new to Manchester or those who feel isolated or lonely.
we are a group of people with a wide range os personal experiences of inclusion- and exclusion.
ILA is a not-for-profit company, run and managed by Disabled People. ILA promotes the right to independent living by providing Personal Assistants (PAs). The PA Services project has many flexible ways of employing and managing PAs.
User-led registered charity supporting and promoting independent living in West Sussex, and contracted to provide the county's support scheme for people on Self Directed Support.
The centre gives free and impartial expert advice on information and products.
A volunteering supporting service for people over the age of 50yrs, who are isolated and or housebound
Users Forum for survivors of mental health treatment in Newham, London
Innovations in Dementia is a community interest company that works with organisations to help them think creatively about supporting and involving people with dementia. We aim to work with advisors who are diagnosed with a type of dementia.
INVOLVE is a national advisory Group, funded by the Department of Health, which aims to promote and support active public involvement in NHS, public health and social care research.
Involving People is a core activity of Clinical Research Collaboration Cymru (CRC Cymru), and has been set up to help patients, service users, carers and members of the public to get actively involved in health and social care research in Wales.
Involving service users (ISU) aims to provide a platform for service users to express their views, concerns and ideas about how mental health services in Norfolk can improve. THIS GROUP HAS NOW CLOSED READ THE LINK FOR EXPLANATION
The Isle of Man Pensioners' Association was formed in 2001 and holds monthly meetings. Its aim is to obtain the Isle of Man Pension Supplement for all those of State Retirement Age who have been resident on the Isle of Man for 10 or more years.
Improving, Inspiring, involving, Young People-school ((I yP-Co) was formed as part of a plan to offer alternative educational programmes in Performing arts (dance).
Kidz Aware is a charity and non for profit social enterprise was set up to help support families of disabled children
Independent, user-led, organisation supporting and promoting independent living to local disabled people, for over 40 years.
It is our aim to provide the Kirkton area with a well used community resource managed by local people which responds to community needs and offers opportunities for personal, family and community development, and growth.
A not for profit organisation we provide services for disabled people. Services are direct payments support including indirect paytemns and payroll, advocacy, communication support and a Talking Newspaper
User led organisation providing Independent Living support services to disabled people and relevant others within Lancashire.
Lebenshilfe Austria is the national umbrella organisation of all regional Austrian Lebenshilfe-Institutions (service providers and advocacy organisations for people with intellectual disabilities).
Service User Group that sits between the new drug partnership in the city of Leeds
The aim of Leeds Involvement Project is to support people using Health and Community Care services to have more control over the services that they use, through involvement in planning and improvement processes. LIP mainly works with disabled people
Leicestershire Centre for Integrated Living (LCIL) is an organisation of disabled people for disabled people.
The charity Life of Your Own believes all people are worthy of respect, can contribute towards society, and that it takes all to form a healthy community.
We as a group represent those Service users who use the day service by providing a voice for our members carers and friends as to any that they feel is relevent as to their needs and or problems that may occur from time to time
Lincolnshire countywide disability charity established in 1994 to encourage, support and assist disabled people within the county to make changes, both in their personal lives and in the community, which enables them to live their lives to the full.
Set up in 1995 with the aim of improving mental health services in Liverpool. The Consortium ensures that people who commission & provide mental health services in the city hear the voices of people who use the services.
Living Options Devon exists to ensure people with physical and/or sensory disabilities and Deaf people with sign language can make an active and equal contribution in society.
The Lothian Centre for Integrated Living (LCIL) is a user-led disability organisation based in Edinburgh and the Lothians. LCIL provides a range of services to support disabled people to live independently.
An organisation that tries to make life simpler for people on low incomes dealing with HMRC (Revenue & Customs) and the DWP (Department of Work and Pensions).
An independent mental health service user charity working towards positive changes within mental health services. We equip, enable and empower service users to take an active role in the development of mental health services.
United Kingdom based charity that is having a good cause for the less privileged
MHF is a charity that provides an independent and authoritative voice for male health in England and Wales and tackles the issues and inequalities affecting the health and well-being of men and boys.
A web site is aimed at anyone providing support to someone experiencing mental illness.
MHNE is a consortium of Mental health voluntary and community sector organisations.
The Survivors History Group was founded in April 2005 to value and celebrate the contribution that mental health service users/survivors have made and are making to history.
Promotes self advocacy for adults with a learning disability and their carer's.
Mind in Salford provides community based mental health advocacy to individual past or present mental health service users in Salford.
Mobilise is a self help organisation run for disabled people by disabled people, and concerns itself with the needs of disabled people primarily by encouraging greater independence through enhanced mobility.
Learning, support, advice and employment opportunities for disabled people.
We are a representative group of volunteers. An active team of Service Users and Carers dedicated to promoting the mental health of people with mental health problems, by working in partnership with Service Users, Carers and professionals.
PROVIDES GRANTS TO ADAPT MOTORCYCLES FOR DISABLED RIDERS
NCIL is the national organisation providing information, training, expertise and policy development on all aspects of direct payments, individual budgets and independent living.
UK Network of people who have experienced severe mental illness. Service user led with funding from Rethink, we have a members magazine and national groups. Membership free to service users.
The Academy will identify, celebrate, endorse and promote excellence in skills development, learning support and training practice in social care in England.
'National Voices' is a project to create a new umbrella charity capable of representing the diverse interests of health and social care service users, patients and carers.
The acronym came from North East Derbyshire & Chesterfield Association for Self Help. We are an umbrella organisation for self-help groups in the mental health sector.
we are a service user involvment forum for individuals who have/or are experiencing mental health issues
Newham Ethnic Minority Disablilty Alliance (NEMDA) is organisation and local voice of Ethnic Minority Disable People in the borough of Newham
The NCODP is a human-rights group controlled by disabled people and their organisations. We organise and take part in campaigns and consultations that promote social equality and dignity for all disabled people.
Developing systems to enable people with learning difficulties and family carers to be involved. Providing advice, support and guidance to all to achieve this.
We are an Arts Practice and Voice Group - with Online skills and Offline practice to enable MH Service Users .
User led organisation aiming to improve mental health services in North Staffordshire.
The North West Users Research Advisory Group (NWURAG) was formed in 2000 with the aim of supporting user involvement in research. Members come from organisations representing the public, service users, universities and health management.
North Worcestershire DIAL is a free and independent, confidential, information and advice service which was formed in the early 1990s. N.W. Dial covers North Worcestershire, the districts of Bromsgrove, Redditch and Wyre Forest.
We started in 1975. We aim to provide information and support to lesbians, gay men, bisexuals and transgendered people in Nottinghamshire and adjacent counties.
user-led, funded by local Borough, open 365 days, mental health/drug/alcohol services. free to residents
The NMC is the regulator for nurses and midwives in the UK. We were set up by Parliament to ensure that nurses and midwives provide high standards of care to their patients and clients.
Optua is a Suffolk-based disability organisations providing a wide range of services and opportunities for disabled people.
User led self advocacy for people with learning disabilities. Speaking up for ourselves and breaking down the barriers that may prevent us having the life we choose.
We are a small team who work across Social and Community Services supporting consultation and involvement
www.papool.co.uk is a dedicated website for disabled people looking to recruit a Personal Assistant (carer) and Personal Assistants (carers) who are looking for work.
Services and support for people with multiple disabilities, their families and carers.
The Participation Project at Havering College is run by service users and carers and exists to promote the service user and carer voice in the education of social care staff.
Write a diary about any health experience and read about others who have been through a similar situation. Realise you are not alone.
We provide Advocacy to people with a disability be it sensory, physical, learning or mental health. we cover all Shropshire, Telford & Wrekin we help with almost any issue a person needs help with
Peer Support Fife is a voluntary organisation promoting the peer support model in the mental health setting in Fife. Other areas of interest include user/carer involvement, peer advocacy and inclusion.
People First Lambeth is an independent charity that supports people with learning difficulties to speak up for themselves.
People's Voices offer advocacy services in Buckinghamshire and Milton Keynes and provides support to people reciving indiviudal budgets
Picker Institute Europe is a not-for-profit organisation that makes patients' views count in healthcare through research and development.
Polari works for better services for older lesbians, gay men, bisexuals and transgender (LGBT) people.
A support network for Polio Survivors experiencing and living with post polio syndrome
Group of mental health service users who campaign for better mental health services, locally and nationally.
An independent user watchdog of Patient and Public Involvement in Health, Social Care and Social Justice. MIKE IS NOW A MEMBER OF THE NSUN (NATIONAL SURVIVOR USER NETWORK) MANAGEMENT COMMITTEE
A monthly informal Network Meeting for people with Learning Disabilitys in the Preston area led by people with learning Disabilitys
Poole Rights Organisation on Disability was established in December 2002 to promote the rights of disabled people. We are a company limited by guarantee and membership.
A network for all those concerned with the involvement of patients, service users and carers in the education of health professionals.
PULSE Independent Living is a service provider who supports individuals who wish to remain living independently at home and within their communities.
The Participation Workers' Network for Wales is a free service for workers and organisations who are promoting participation through their work with children and young people.
RADAR is the UK's leading pan-disability campaigning organisation and network of disability organisations and disabled people. We represent out members by fast-tracking their opinions and concerns to policy-makers and legislators in Westminster.
A campaigning organisation of Lesbian, Gay and Bisexual disabled people in Leeds
Raise! is an unique company because we are:100% service user led,A mental health training & consultancy company,Raising mental health, hope & recovery,not for profit organisation,run by volunteers,Driven by passion, educating from experience
A National Organisation of Disabled Lesbians, Gay Men, Bisexuals and Transgender people. Working for inclusion and full civil rights.
Community Care Division with responsibility for planning, providing, commissioning and monitoring service to people with a learning disability and their carers
Ricability is an independent research charity that publishes free, unbiased consumer reports for older and disabled consumers based on thorough professional research.
Our Vision is "A barrier-free world with empowered disabled people who have independence, fulfilment and a sense of self-worth."
RAD is a Deaf led organisation. We promote the welfare and interests of Deaf people. We believe Deaf people should receive the same access and opportunities as hearing people.
Provides weekly support group sessions for people suffering with social anxiety / social phobia
Sandwell Visually Impaired (SVI) is a self-help voluntary group. Our members are all visually impaired themselves, or are the carers of people with a visual impairment.
Self Help Services is a user-led voluntary organisation that co-ordinates groups and other self-help services for people experiencing mental-ill health, discrimination, social exclusion and/or emotional problems.
The Seroxat User Group was formed to support patients suffering adverse reactions and withdrawal symptoms from Seroxat and other SSRI antidepressants.
We are an expanding group of Service Users who in meeting regularly with Organising Tutors; aim to make changes to Social Work & Care education and policy.
The Service User and Advisory Group have an overview of service user and carer involvement in all aspects of the course. This group is also intended to develop a partnership approach and sense of ownership’ of the work.
newly formed post within PCC adult social care dept. Tasked with consulting service users on future developments and current policy.
SURF brings the users of adult mental health services in the Durham and Chester-le-Street PCT area and their carers together to discuss issues and exchange experiences. The group decided it was no longer able to continue maintaining the website
Services for Independent Living is an organisation of disabled people; constitutionally 75% of the Board must be disabled people; our Board comprises 7 disabled service users and 3 non disabled professionals.
Shaping Our Lives is a national user controlled independent organisation that was started in 1996. We work with a diverse range of service users and aim to support the development of local user involvement to deliver better outcomes for service users.
SCIL is a limited company and a registered charity run, predominantly, by disabled people to promote choice, control and independence for disabled people in Sheffield
Shield is a charitable organisation staffed mainly by volunteers from all walks of life. We are committed to improving the quality of life of those infected and affected by HIV.
A network of individuals with disability, organisations supporting individuals with disability, their carers and advocates working together to provide a collective voice for disabilty throughout Shropshire.
Sight Service is a user-led organisation. Service users are working to get their voice heard and influence decisions made about public services which affect the everyday lives of all visually impaired people in Gateshead and South Tyneside
We support people with learning difficulties and people without to work together to make changes. People with learning difficulties take the lead and are involved in every part of the Skillnet Group.
SCIE's aim is to improve the experience of people who use social care by developing and promoting knowledge about good practice in the sector.
Soundwell is a community-based music therapy service working in the field of adult mental health, in Wiltshire, B&NES and Somerset.
Voluntary organisation of users and survivors of the mental health services.
We are dedicated to promoting equality and diversity throughout the region.
SYCIL provides a range of inclusive integrated services to enable and support disabled people to live independently.
SCIL is a democratic membership organisation run and controlled by disabled people. We are committed to campaign for the full civil rights of disabled people whilst supporting disabled people to live independently.
WE WORK WITH DISABED PEOPLE AND ELDERLY AND ARE USER GROUP OF ONLY DISABLED PEOPLE WE ACT AS ADVOCATES AND SIGNPOSTING FACILITY AND ALSO PROVIDE RECYCLED COMPUTERS
Speaking Up provides advocacy based projects and services for people with learning difficulties, mental health problems and other disabilities.
A self-help group in Sevenoaks, Kent set up by service users and run by service users to support and help members to recover.
We are a research and development project funded by the Joseph Rowntree Foundation. We are asking what is person centred support and what are the barriers to it?
Suffolk User Forum (SUF) works on behalf of mental health service users to ensure that their voices are heard by mental health service providers.
The Supporting People Users Forum (SPUF) was set up in July 2008. One aim of the group is for users of Suffolk Supporting People funded services to have their say in how to improve our services.
The Surrey Coalition is run and managed by disabled people for disabled people.
An organisation of disabled people for disabled people, based in Surrey. Proving Advocacy, Informationa. Also affordible home foot care in parts of Surrey.
Surrey Independent Living Council (SILC) is a non-profit-making voluntary sector organisation run by and for disabled people.
support chairty for women who have/are suffering with mental health distress
SUST is a network of mental health service user trainers providing training in Sheffield and South Yorkshire.
The Service User Training & Research Association (SUTRA) is a non profit making organisation run by long term users of health and social services. We provide training, research and facilitation for user and professional groups.
Sutton 1 in 4 Network is a new community organisation for people who have done or do experience mental and emotional distress and live in Sutton.
Cancer services user/carers group that works in partnership with healthcare professionals
A user led organisation which raises the awareness of disability issues throughout Swindon and Wiltshire.
The Alliance is a user led organisation which provides advocacy, training and helpline services to those currently in drug treatment, those who have accessed drug treatment in the past and those who may access drug treatment in the future.
The Cairn promotes awareness of mental illness, depression, psychosis, self-harm, recovery and the role of the care.
The DAN is a network of disabled people living in the Plymouth area. We have regular monthly meetings open to all disabled people.
A one stop shop for counselling, information, leisure opportunites and training. WOMEN ONLY
We are a service user involvement project and have been running since April 2005. The project is part of Mind in Brighton & Hove, an organisation that actively seeks to employ mental health service users.
The National Council for Palliative Care (NCPC) is the umbrella organisation for all those who are involved in providing, commissioning and using palliative care and hospice services in England, Wales & Northern Ireland.
The People's Forum is an independant service user group for the county of Leicestershire, working to give a voice to service users and to help improve the services people receive.
The Rowan Organisation is a charity, not for profit, user controlled organisation which provides direct payments support for disabled and older people.
The Vassall Centre Trust offers barrier-free work space to disability organisations. The Trust is developing a single story building for this purpose. It also offers a conference centre for use by any members of the community.
Time to Change is England's most ambitious programme to end discrimination faced by people who experience mental health problems.
The Transnational and Transracial Adoption Group (TTAG)is run by and for transnationally and transracially adopted people. We provide an opportunity for transracially and transnationally adopted people to meet others.
We are a service user led group, our aim is to improve substance misuse services available to users.
Formerly the British Council of Disabled People. Service user led organisation
The User Involvement in Voluntary Organisations Shared Learning Group aims to encourage shared learning about service user and/or carer involvement between medium and large voluntary sector organisations working within the UK.
Project offering free support to local groups to become more user led and develop structure to enable service delivery in the future
Providers of adult Mental Health advocacy, Independent Mental Capacity Advocacy, and facilitators of Service-User involvement in Northamptonshire.
Viewpoint is a Mental Health service User involvement Charity,which enables past and present service users to be involved in the monitoring and development of services in Hertfordshire.
Vision Sense is a user-led organisation of disabled people based in the North East. We deliver equality, diversity, human rights, inclusive design and personalisation information, training, audits and policies.
We are a service user involvement group based at Scunthorpe and District Mind. We meet once or twice weekly and all members are service users past or present.
Scotland wide service user led organisation for people who have or have had mental health problems
Holistic Information Service for residents and professional working in the Borough
The Wandsworth Local Involvement Network is a new membership organisation, open to individuals and organisations in Wandsworth who want to make the local health and social care services better.
Warrington Disability Partnership (WDP) is an independent, user led Social Enterprise committed to valuing everyone's life skills, experience and individuality to enable positive change.
The Warrington User Groups is formed by representatives of the various drugs and alcohol services around Warrington.
The West Berkshire Disability Alliance is a user led organisation that seeks to improve the lives of all disabled people connected with West Berkshire
Info, advice, advocacy, access audits, equality training, campaigns.
WECIL helps more than 4000 disabled people to live independently. It offers a wide range of services designed to enable its service users to carry out many day to day normal activities & give them choice & control over their lives.
Support, social and friendship for women who have or have had problems with alcohol.Women are welcomed whatever philosophy of alcohol use/misuse/recovery they prefer to use at present.
Wideaware's aim is to promote disability equality by providing training packages that offer the convenience of e-learning combined with the support and interaction of face-to-face training.
Wigan & Leigh People First is a Self Advocacy Group run for people with learning disabilities in the Wigan and Leigh Area. We support our members to Speak Up and learn about their rights and how to fight for them
We offer a range of services for users of health and social service. See our website for further information.
User controlled organisation which exists to promote Independent Living to enable Wiltshire disabled people to have more choice and control in their lives.
Wiltshire People 1st is a self advocacy group run and controlled by people with learning difficulties who live in Wiltshire
Wish provides long-term, gender-sensitive support and services to women with mental health needs in their journey through the criminal justice and mental health systems and into the community.
WASU aims to break down the barriers which stop people remaining in control of their own lives and to change peoples' ways of thinking about and working with people who use services.
A group of shy and socially anxious whom help each other by holding regular and friendly meets.
We are the local authority with Social Services responsibility. Social Care undertakes a number of functions, including the support for our emerging User led organisation
WRVS provides practical support, through the power of volunteering, to enable older people to get more out of life.
WSAD is a disability charity which provides information & advice on disability issues within West Sussex.
The Yorkshire Cancer Network User Partnership Group is a group of service uses working in partnership with health care professionals to help shape the future delivery of cancer services within The Network area.
An advocacy project for people with learning disabilities who live in Gateshead and South Tyneside.
Total number of member organisations: 386

