Shaping Our Lives

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Seeking New Members - Healthcare Associated Infection Research
We are inviting members of the public, patients and carers in England to join the Service User Research Forum (SURF). SURF is a small group of lay people interested in reducing infections resulting from, for example, being in a healthcare setting or havi
Further information: Seeking New Members - Healthcare Associated Infection Research
From: HCAI Service User Research Forum (SURF)
Date added: 01/02/2012

Care matters to me – does it matter to you?
The Care and Support Alliance is working to raise the profile of the need for social care reform to ensure a fairer system for everyone.
Further information: Care matters to me – does it matter to you?
Date added: 01/02/2012

Welfare Reform The dread of things to come
The contributions to this short ebook have been written in the moment of political campaigning. Free download
Further information: Welfare Reform The dread of things to come
Date added: 01/02/2012

ENIL - European Network on Independent Living
Welcome to our first Newsletter of 2012. This year you will receive it monthly.
Further information: ENIL - European Network on Independent Living
From: European Network on Independent Living ( ENIL)
Date added: 01/02/2012

Dr. Phil Hammond Benefit Show for Patients First
DR PHIL HAMMOND performs his highly-acclaimed comedy about the dark side of healthcare, the dangers of political meddling and the importance of sensible pleasuring ... as a benefit for PATIENTS FIRST.
Event date: 9 May 2012
Further information: Dr. Phil Hammond Benefit Show for Patients First

Jobs & Volunteering
Time to Change is England's biggest ever attempt to end the stigma and discrimination that people with mental health problems face. We want to expand our existing social movement to include children and young people.
Further information: Jobs & Volunteering
From: Time to Change
Date added: 30/01/2012

INVOLVE 2012:Putting people first in research Conference call for presentations
A unique forum for people interested in public involvement in health and social care research. To be held on 13 and 14th November 2012 in Nottingham. Closing date for presentations 26 March 2012
Event date: 13 November 2012
From: INVOLVE

London Social Work Action Network
Half Day Seminar Privatisation & Social Care Saturday 4th Feb 2012 10am-2pm
Event date: 4 February 2012
Further information: London Social Work Action Network

Partnership in Social Care at a time of cuts
Creative approaches and practical solutions A FREE conference for all those involved in or working in social care - students, service users & professionals
Event date: 21 March 2012
Further information: Partnership in Social Care at a time of cuts

Invitation – developing the Long Term Conditions Outcomes Strategy
An Accelerated Design Event – 14th and 15th March 2012, Holiday Inn Bloomsbury, London
Event date: 15 March 2012
Further information: Invitation – developing the Long Term Conditions Outcomes Strategy

Partnership in social care at a time of cuts
'Partnership in Social Care at a time of cuts: Creative approaches and practical solutions' A FREE conference for all those involved in or working in social care - students, service users & professionals.
Event date: 21 March 2012
Further information: Partnership in social care at a time of cuts
From: LSBU service user conference organising group

SWAN London 'Privatisation and Social Care' - 4th Feb
Seminar on impact of privatisation in social care event for all using/in social care. 4th February, 10am-2pm, London Metropolitan University, Holloway Road.
Event date: 4 February 2012
Further information: SWAN London 'Privatisation and Social Care' - 4th Feb
From: LSBU service user conference organising group

ENIL Invitation to the hearing in the European Parliament
ENIL and its partner organisations will present evidence about the impact austerity measures are having on people with disabilities in the European Union,
Further information: ENIL Invitation to the hearing in the European Parliament
From: European Network on Independent Living ( ENIL)
Date added: 20/01/2012

ENIL Press Release
ENIL present in the discussion of Swedish Personal Assistance Law and Independent Living Monday at International Summit on Accessibility in Vienna
Further information: ENIL Press Release
From: European Network on Independent Living ( ENIL)
Date added: 20/01/2012

Are you a carer in Cornwall
Open to all informal and unpaid carers the Carers Forums are being set up across Cornwall in each of the nine new Health and Social Care hubs to provide an avenue for information and guidance.
Further information: Are you a carer in Cornwall
Date added: 18/01/2012

Are personal budgets really the way ahead for social care?
Two key figures in social care have expressed doubt about the government's reliance on personal budgets as the way forward
Further information: Are personal budgets really the way ahead for social care?
Date added: 17/01/2012

CITV launches series two of popular children's storybooks with deaf presenter
More of the best children's stories are being brought to life in British Sign Language, in the second series of CITV's Signed Stories.
Further information: CITV launches series two of popular children's storybooks with deaf presenter
Date added: 16/01/2012

Outset LGBT Festival
This February The Brewhouse Theatre, Somerset will once again be playing host to a weekend of LGBT comedy, theatre, dance and music. All under one roof!
Further information: Outset LGBT Festival
Date added: 16/01/2012

FREE WOMEN'S I.T & POETRY WORKSHOPS
New FREE Workshops for Women starting in February – sign up now! Express yourself! Learn new skills and make new friends in a safe, supportive atmosphere ...
Event date: 11 April 2012
Further information: FREE WOMEN'S I.T & POETRY WORKSHOPS
From: CoolTan Arts

SHELTER Information for People with disabilities
If your health is not what it was, you're disabled, in hospital for a while or contemplating if a care home might be the better option for you, take time to explore your options. Find out what support you could get if you prefer to stay at home.
Further information: SHELTER Information for People with disabilities
Date added: 16/01/2012

Dada-South's Dada-News
Dada-News is our monthly newsletter dedicated to the latest goings on in the field of disability inspired arts and the work of disabled and Deaf artists.
Further information: Dada-South's Dada-News
Date added: 16/01/2012

How user friendly is your country's healthcare system in 2012?
SURVEY OBJECTIVE: “To compare the extent to which the national healthcare systems of Europe take the patient and the consumer into consideration in 2012”.
Further information: How user friendly is your country's healthcare system in 2012?
Date added: 09/01/2012

Working Across Agency Boundaries: Parents with learning disabilities
ESRC funded PhD Studentship with parents with learning disabilities and social workers from children's and adults' services.
Further information: Working Across Agency Boundaries: Parents with learning disabilities
Date added: 09/01/2012

Mental Health Resistance Network: Judicial Review
Members of the Mental Health Resistance Network (MHRN) have been working with a solicitor towards making a claim for a Judicial Review ......
Further information: Mental Health Resistance Network: Judicial Review
Date added: 03/01/2012

Time to Change grants fund
The Time to Change grants fund will distribute £2.7 million to approximately 75 projects across England from April 2012 to March 2015.
Further information: Time to Change grants fund
From: Time to Change
Date added: 03/01/2012

We're seeking people to take part in a photography project linked to Dying Matters Awareness Week 2012.
This photography project will capture the small things that have made a big difference in end of life care. Participants will work closely with experienced documentary and portrait photographer Nadia Bettega.
Further information: We're seeking people to take part in a photography project linked to Dying Matters Awareness Week 2012.
Date added: 21/12/2011

Positive East Newsletter
News of our World AIDS Day, including 5K Red Run, station collections, East End Weekender & Danny Boyle. Plus, Spotlight on housing, employment, LGBT and African services. .
Further information: Positive East Newsletter
Date added: 21/12/2011

Writing competition: Final chapters
Talking and reading about other people's childhoods, sadness, happiness and aspirations can help us to cope with our own ups and downs, but shared experience is ........
Further information: Writing competition: Final chapters
Date added: 21/12/2011

National Community Activists Network
Welcome to NatCAN, the National Community Activists' Network.
Further information: National Community Activists Network
Date added: 20/12/2011

Newsletter 2011 SoundMinds
2012 will see a long overdue upgrade to Sound Minds Battersea studios
Further information: Newsletter 2011 SoundMinds
From: Sound Minds
Date added: 20/12/2011

Vic Finkelstein: Academic and disability activist
Vic Finkelstein, who has died aged 73, was an activist and academic whose writings gave intellectual shape to the disabled people's movement.
Further information: Vic Finkelstein: Academic and disability activist
Date added: 20/12/2011

Patient Decision Aids (PDAs)
Patient Decision Aids (PDAs) are designed to help patients make difficult decisions about their treatments and medical tests.
Further information: Patient Decision Aids (PDAs)
Date added: 19/12/2011

Children and young people's views on health
NCB is committed to giving children and young people a voice in matters that affect their lives. Over 60 children and young people aged between 10-18 have attended the events and contributed to the reports.
Further information: Children and young people's views on health
From: National Children's Bureau
Date added: 19/12/2011

Home › Information Centre › Useful Resources
Big Society is a new idea in government but, in many local areas, the NHS and local authorities are already supporting services and projects that use a Big Society approach to support people with mental health difficulties.
Further information: Home › Information Centre › Useful Resources
Date added: 19/12/2011

Disability LIB Videos & Toolkits
A key element of the lasting legacy is an interactive web resource with 30 short films about Disabled Peoples Organisations (DPOs) ......
Further information: Disability LIB Videos & Toolkits
From: Disability LIB
Date added: 05/12/2011

‘What did you learn at school today' project
The Alliance for Inclusive Education (ALLFIE) is working together with the British Library to record the educational experiences of disabled people over the last 100 years.
Further information: ‘What did you learn at school today' project
Date added: 23/11/2011

AdEPT:Understanding and Preventing the Adverse Effects of Psychological Therapies
If you have experienced therapy as a therapist or client, that you feel has ‘gone wrong' or been harmful, we are keen to hear from you. It doesn't matter whether you have used NHS services or not.
Further information: AdEPT:Understanding and Preventing the Adverse Effects of Psychological Therapies
From: Your Voice
Date added: 23/11/2011

SIGN THE PETITION
Stop and review the cuts to benefits and services which are falling disproportionately on disabled people, their carers and families
Further information: SIGN THE PETITION
Date added: 15/11/2011

On Becoming a Service User Researcher:
Study Title: On Becoming a Service User Researcher: An investigation of the professional identity roles and experiences of service users working in mental health research in the UK. Participant
Further information: On Becoming a Service User Researcher:
Date added: 08/11/2011

Healthy Places
Healthy Places focuses on legal areas that are new, interesting, often not fully understood, or, not recognised at all as having a potential impact on health in a local area.
Further information: Healthy Places
Date added: 25/10/2011

European 'And Others' Trans Activist Toolkit
The 'And Others' toolkit is aimed at people across Europe interested in trans activism on the topics of gender recognition, healthcare, employment, media representation and hate crime.
Further information: European 'And Others' Trans Activist Toolkit
Date added: 25/10/2011

Cuts, crisis,and resistance building alliances in social work and social care
The Seventh Annual Social Work Action Network Conference (SWAN) will be hosted by Liverpool Hope University on 30th and 31st March 2012
Event date: 31 March 2012
Further information: Cuts, crisis,and resistance building alliances in social work and social care

Standards We Expect -a resource
The Standards We Expect Project has produced a range of documents about person-centred support written for a variety of people on a variety of topics.
Further information: Standards We Expect -a resource
From: Shaping Our Lives National User Network
Date added: 28/09/2011

LINks and HealthWatch: Getting it right for children and young people - Leeds - £50 training
This one-day training course will help you to start involving, or improve your involvement of, children and young people in your LINk, with an opportunity to hear from young people directly.
Event date: 7 February 2012
Further information: LINks and HealthWatch: Getting it right for children and young people - Leeds - £50 training
From: National Children's Bureau

Free VCS training day - Building Consortia and Working in Partnerships
Swindon NCB's one-day introductory course is aimed at children and young people's voluntary and community (VCS) organisations who are looking to form consortia and partnerships in order to be able to bid for public service contracts.
Event date: 16 February 2012
Further information: Free VCS training day - Building Consortia and Working in Partnerships
From: National Children's Bureau

Free commissioning training - London
Practical training to help voluntary sector organisations find out more about delivering public services.
Event date: 28 February 2012
Further information: Free commissioning training - London
From: National Children's Bureau

Dementia and our society
Having a senior moment" Not quite all there" Non compos mentis..."
Further information: Dementia and our society
Date added: 30/08/2011

No Health Without Mental Health: A guide for community organisations. (PDF file)
Every year, one in six of us has a mental health problem. Depression and anxiety are the most common, affecting about half of the adult population at some point in their lives.
Further information: No Health Without Mental Health: A guide for community organisations. (PDF file)
Date added: 20/07/2011

Digitising Disability
Digitising Disability aims to create a living archive of Disability Arts and the work and stories of disabled artists.....
Further information: Digitising Disability
Date added: 05/07/2011

Commission on Funding of Care and Support
The Commission on Funding of Care and Support is an independent body responsible for the review of the funding system for care and support in England.
Further information: Commission on Funding of Care and Support
Date added: 04/07/2011

Want info on women & health? Sign up for news updates
The Women's Health and Equality Consortium (WHEC) is a strategic partner to the Department of Health, committed to building the capacity of women's organisations and strengthening the voice of women at a national level to reduce women and girls he
Further information: Want info on women & health? Sign up for news updates
Date added: 29/06/2011

Transforming social care
Transforming social care: sustaining person-centred support What are the hopes and frustrations in the everyday practice of person-centred support, or 'personalisation'?
Further information: Transforming social care
Date added: 31/05/2011

Supporting people Towards a person-centred approach
There is widespread agreement that care and support services must change radically if they are to meet the rights and needs of the rapidly growing number of people who require them.
Further information: Supporting people Towards a person-centred approach
Date added: 25/05/2011

ILGA launches 2011 ILGA State-Sponsored Homophobia Report at University of London
Every year, ILGA produces maps on Gay and Lesbian rights in the world as well as its State Sponsored Homophobia report.
Further information: ILGA launches 2011 ILGA State-Sponsored Homophobia Report at University of London
Date added: 16/05/2011

Disabled and reduced mobility airport guide
Travelling with a disability or a restricted mobility can be a daunting experience if the correct assistance is not available at the airport. We have created a small guide with information and tips to help make your trip flow smoothly.
Further information: Disabled and reduced mobility airport guide
Date added: 09/04/2011

EmergencySMS SMS to the emergency services
Register your mobile phone now; don't wait until you need the emergencySMS service.
Further information: EmergencySMS SMS to the emergency services
Date added: 07/04/2011

The Charity of Music
We run projects in the charity sector doing two basic things: First we play concerts; second we improve the performance skills of our users so they play great concerts.
Further information: The Charity of Music
Date added: 06/04/2011

Personalisation and Partnership
Report on a research project looking into a successful working relationship: what factors disabled people feel are important in their relationships with their personal assistants (PAs), carers and support workers
Further information: Personalisation and Partnership
Date added: 21/03/2011

Number of news items: 72